Articles
NIH - GHRNicolaides-Baraitser Syndrome
Genetics Home Reference report on NCBRS from NIH. |
WikipediaNicolaides-Baraitser Syndrome
More helpful information from Wikipedia. |
Our families making headlines
Oskar diagnosed at 14 monthsOskar was diagnosed with NCBRS at 14 months old
Learn more about his journey! |
Jeans for GenesCallum's story is in the news
Learn more about his annual fundraising event: Jeans for Genes! |
New rideNew Buggy for Harley Smith of Farndon
Harley's story in the news! Learn more about how his family acquired him a new ride. |
Gavin's Family FundraisingFamily Fundraises to Get Face Time With Those Who Share Rare Genetic Syndrome
Gavin's story is in the news! Learn more… |
Worlwide Locations
This map is not all inclusive of those diagnosed with NCBRS - it only contains data gathered from the officially diagnosed NCBRS families in our Facebook group. Updated March 2021, (213 families).