get involved
Without people like you getting involved as a donor, a volunteer or anything in between we wouldn't be able to provide the support needed to individuals affected by Nicolaides Baraitser Syndrome, their families and carers, and the medical professionals who support them. We aim to assist those affected by providing practical advice, holding annual conferences, raising public awareness of NCBRS and providing grants to NCBRS patients/families. Our long-term goal is to help to fund future medical research studies.
There are a number of ways in which you can get involved to help us in our mission to support and educate the NCBRS community. By working together we can make a real difference to the lives of people affected by Nicolaides-Baraitser Syndrome.
There are a number of ways in which you can get involved to help us in our mission to support and educate the NCBRS community. By working together we can make a real difference to the lives of people affected by Nicolaides-Baraitser Syndrome.
Please contact us on: [email protected] to tell us about an idea you have to get involved in activities. Please do check this page from time to time as we will update it when any new ways of getting involved come up. Thank you for your support.
