NCBRS Worldwide Foundation
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Home  >  Stories

Our stories

Meet the beautiful children and learn their stories…
​
​Click on an image to read more about the children diagnosed with NCBRS. Learn about the shared and unique medical experiences, progress, joys, setbacks, and personalities.

If you are diagnosed with NCBRS and/or are a parent/guardian of a person diagnosed with NCBRS, and would like your story published here please email us at [email protected]

Contact US

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NCBRS Worldwide Foundation
124 City Road,
​London,
​EC1V 2NX,
​United Kingdom​
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Email us:
​[email protected]
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Find us on Facebook:
​"NCBRS Worldwide Foundation"
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Find us on Twitter:
​@
ncbrsfoundation
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Find us on Instagram:
​@ncbrs
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Copyright © 2020-2026 NCBRS Worldwide Foundation  |  Registered charity in England & Wales 1190194
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  • Home
  • About NCBRS
    • What is NCBRS?
    • Resources for the Newly Diagnosed
    • Board of Trustees
  • Research
    • NCBRS Patient Registry
    • The NCBRS Mouse Model
    • NCBRS Clinical Photos For Dysmorphology Study!
    • Kennedy Kreiger: NCBRS Research Study
    • Rare Patient Voice
    • Publications
    • NCBRS Scientific Advisory Board
    • Posters
  • Stories
    • Arno
    • Axel
    • Callum
    • Charlie
    • Emmett
    • Esther
    • Evie
    • Hannah
    • Harley
    • Harvey
    • Ismael
    • Isabelle
    • Jaedon
    • Jana
    • June
    • Kodey
    • Kyle
    • Lena
    • Lisa
    • Loris
    • Luise
    • Magnolia
    • Mikey
    • Nojus
    • Oskar
    • Ria
    • Sylvain
    • Vaeda
    • Vitoria
  • Resources
  • Gallery
  • Events
    • Awareness Day
    • "DOING EUROPE" Family Conference - NL 2026
  • Store
  • Get Involved
    • Donate
    • Fundraise
  • Translate