terms and conditions
These Terms and Conditions are effective as of 07th October 2021.
This website is owned and operated by the NCBRS Worldwide Foundation, which is a REGISTERED CHARITY IN ENGLAND AND WALES - NO. 1190194
(“us”, “we”, or “our”) means NCBRS Worldwide Foundation, Nicolaides Baraitser Syndrome (NCBRS) Worldwide Foundation or NCBRS Parent Support Group.
This website: www.ncbrs-worldwide-foundation.weebly.com and other sites we own and/or operate including our social media pages/groups and online platforms, are intended to provide information about Nicolaides-Baraitser Syndrome (NCBRS), the NCBRS Worldwide Foundation’s activities and issues relevant to our objectives.
Please read these terms and conditions, our "Privacy Policy" and our "Disclaimer" before using this website. By using or accessing any part/s of this website and other sites we own and/or operate including our social media pages/groups and online platforms, you shall be deemed to have agreed to these terms and conditions, our privacy policy and our disclaimer in full.
Access to website
We do our very best to ensure that this website is available 24 hours a day, 365 days of the year, we shall not be liable if for any reason it is unavailable at any time or for any period. Access to this website may be suspended temporarily and without notice, in the case of system failure, maintenance or repair or for any other reason.
Any material you transmit or post to this website and other sites we own and/or operate including our social media pages/groups and online platforms will be considered non-confidential and non-proprietary. We shall have no obligations with respect to such material.
You are prohibited from posting or transmitting to or from this website and other sites we own and/or operate including our social media pages/groups and online platforms any material that is: threatening, defamatory, obscene, indecent, offensive, pornographic, abusive, liable to incite racial hatred, discriminatory, menacing, scandalous, inflammatory, blasphemous, in breach of confidence, in breach of privacy or which may cause annoyance or inconvenience of
You must not use our website and other sites we own and/or operate including our social media pages/groups and online platforms fraudulently, for any unlawful purpose, for the purpose of harming or attempting to harm any persons in any way. You may not otherwise misuse this website.
Copyright
You may print, download or otherwise reproduce the NCBRS Worldwide Foundation’s copyright material appearing on this website for your own personal use without seeking prior authorisation on the following basis:
Our permission to print, download or otherwise reproduce copyright material does not extend to any material on this website and other sites we own and/or operate including our social media pages/groups and online platforms that are the copyrighted material of any other person. For example, you are not permitted to reproduce photos that are the property of others or copy articles that are marked as being owned by particular newspapers, publications or from any of the links provided on this website.
If you wish to use any material from our website and other sites we own and/or operate including our social media pages/groups and online platforms for any commercial or business purpose, you must send us an email at: [email protected] to ask for permission and to give details of what you want to use, and how and why you plan to use it.
Links to and from other websites
Our website may link to and from other websites that are not owned or operated by us. Please bear in mind, we have no control over the content and policies of those websites, and cannot accept responsibility or liability for their respective privacy practices. If you use these links, you leave this website. We have not reviewed these websites and do not control nor are we responsible for these websites or their content or availability.
We do not, therefore, endorse or make any representations about them, or any material found there. If you decide to access any of the websites linked to this website, you do so entirely at your own risk. You should always check out the privacy policies of any new website you access from this website.
If you would like to link to our website, please send us an email at: [email protected] to ask for permission and to tell us why and where you intend to link our website from.
Acceptance of These Terms and Conditions
By accessing and using this website and other sites we own and/or operate including our social media pages/groups and online platforms You acknowledge that you have read these terms and conditions and agree to be bound by these. If you do not agree to abide by these, you are not authorised to access or use this website and other sites we own and/or operate including our social media pages/groups and online platforms.
Changes to These Terms and Conditions
We reserve the right to revise these terms and conditions at any time by updating the changes here at the same link from which you are accessing these terms and conditions. You should check this website from time to time to review the current terms and conditions because your continued use of this website and other sites we own and/or operate including our social media pages/groups and online platforms after any modifications constitutes acceptance of the relevant changes or new terms and conditions. If you do not wish to be bound by these terms and conditions, our privacy policy and disclaimer, please do not use this website, other sites we own and/or operate including our social media pages/groups and online platforms.
Contact us
Please contact us if you have any questions about these terms and conditions by emailing: [email protected]
This website is owned and operated by the NCBRS Worldwide Foundation, which is a REGISTERED CHARITY IN ENGLAND AND WALES - NO. 1190194
(“us”, “we”, or “our”) means NCBRS Worldwide Foundation, Nicolaides Baraitser Syndrome (NCBRS) Worldwide Foundation or NCBRS Parent Support Group.
This website: www.ncbrs-worldwide-foundation.weebly.com and other sites we own and/or operate including our social media pages/groups and online platforms, are intended to provide information about Nicolaides-Baraitser Syndrome (NCBRS), the NCBRS Worldwide Foundation’s activities and issues relevant to our objectives.
Please read these terms and conditions, our "Privacy Policy" and our "Disclaimer" before using this website. By using or accessing any part/s of this website and other sites we own and/or operate including our social media pages/groups and online platforms, you shall be deemed to have agreed to these terms and conditions, our privacy policy and our disclaimer in full.
Access to website
We do our very best to ensure that this website is available 24 hours a day, 365 days of the year, we shall not be liable if for any reason it is unavailable at any time or for any period. Access to this website may be suspended temporarily and without notice, in the case of system failure, maintenance or repair or for any other reason.
Any material you transmit or post to this website and other sites we own and/or operate including our social media pages/groups and online platforms will be considered non-confidential and non-proprietary. We shall have no obligations with respect to such material.
You are prohibited from posting or transmitting to or from this website and other sites we own and/or operate including our social media pages/groups and online platforms any material that is: threatening, defamatory, obscene, indecent, offensive, pornographic, abusive, liable to incite racial hatred, discriminatory, menacing, scandalous, inflammatory, blasphemous, in breach of confidence, in breach of privacy or which may cause annoyance or inconvenience of
- which you have not obtained all necessary licences and/or approvals
- which constitutes or encourages conduct that would be considered a criminal offence, gives rise to civil liability, or otherwise be contrary to the law of or infringe the rights of any third party, in the UK or any other country in the world
- which is technically harmful (including, without limitation, computer viruses, corrupted data or other malicious software or harmful data).
You must not use our website and other sites we own and/or operate including our social media pages/groups and online platforms fraudulently, for any unlawful purpose, for the purpose of harming or attempting to harm any persons in any way. You may not otherwise misuse this website.
Copyright
You may print, download or otherwise reproduce the NCBRS Worldwide Foundation’s copyright material appearing on this website for your own personal use without seeking prior authorisation on the following basis:
- Any graphic, documents and related graphics on this website are not modified in any way;
- no documents are reproduced in a derogatory or misleading manner or context.
Our permission to print, download or otherwise reproduce copyright material does not extend to any material on this website and other sites we own and/or operate including our social media pages/groups and online platforms that are the copyrighted material of any other person. For example, you are not permitted to reproduce photos that are the property of others or copy articles that are marked as being owned by particular newspapers, publications or from any of the links provided on this website.
If you wish to use any material from our website and other sites we own and/or operate including our social media pages/groups and online platforms for any commercial or business purpose, you must send us an email at: [email protected] to ask for permission and to give details of what you want to use, and how and why you plan to use it.
Links to and from other websites
Our website may link to and from other websites that are not owned or operated by us. Please bear in mind, we have no control over the content and policies of those websites, and cannot accept responsibility or liability for their respective privacy practices. If you use these links, you leave this website. We have not reviewed these websites and do not control nor are we responsible for these websites or their content or availability.
We do not, therefore, endorse or make any representations about them, or any material found there. If you decide to access any of the websites linked to this website, you do so entirely at your own risk. You should always check out the privacy policies of any new website you access from this website.
If you would like to link to our website, please send us an email at: [email protected] to ask for permission and to tell us why and where you intend to link our website from.
Acceptance of These Terms and Conditions
By accessing and using this website and other sites we own and/or operate including our social media pages/groups and online platforms You acknowledge that you have read these terms and conditions and agree to be bound by these. If you do not agree to abide by these, you are not authorised to access or use this website and other sites we own and/or operate including our social media pages/groups and online platforms.
Changes to These Terms and Conditions
We reserve the right to revise these terms and conditions at any time by updating the changes here at the same link from which you are accessing these terms and conditions. You should check this website from time to time to review the current terms and conditions because your continued use of this website and other sites we own and/or operate including our social media pages/groups and online platforms after any modifications constitutes acceptance of the relevant changes or new terms and conditions. If you do not wish to be bound by these terms and conditions, our privacy policy and disclaimer, please do not use this website, other sites we own and/or operate including our social media pages/groups and online platforms.
Contact us
Please contact us if you have any questions about these terms and conditions by emailing: [email protected]